Masks
You know how you always give people the pat answers and smile when they ask greet you with “Hi, how are you?” You say that you are fine and grin as though everything is actually good, although you are really feeling totally different inside, basically you wear a mask. Parenting a child with a severe mental illness like bipolar takes a huge toll on the entire family. It is very isolating and embarrassing, people who come in contact with you have very little understanding of what all mental illness entails and just think that your parenting skills stink and that your kid is a brat when they are throwing a fit for what appears to be a trivial reason to the outsider. You hear lots of aside whispers in grocery stores and at parks “I would never let my child speak to me like that!” They don’t understand that for a bipolar kid the triggers are different from for a (and here it is again folks) “normal” kid. Then throw in the mixed salad of other disorders that go along with the bipolar ODD, for those of you not used to dealing with psych lingo that stands for oppositional defiant disorder and it means just what it sounds like, she opposes just about everything that is asked of her just because it is asked of her. She also has neurological developmental disorder NOS (not otherwise specified)…which really means there is no justified cause for it which causes her to have balance problems (she just learned to ride a bike this summer) and muscular skeletal weakness. And the final coup de grace, as if she doesn’t have enough bad things going against her is that she has sensory issues that cause her major distractions. So things that are supposed to be wonderful and exciting like Six Flags is a nightmare to her because it is a sensory overlode. She can’t ride the rides because they are too scarey for her to actually make it through but she wants to becase “everyone else does” and it makes her feel “normal” (I really hate that word!) Skating parties are out because of the balance thing and the loud noise thing….any kind of party is bad bacause sugar has ill effects on her. I could go on ad nauseam, but I am sure that you are getting the picture, life is hard for her and thus hard for us. She is a wonderful and sweet girl with a heart of gold who would give her left arm to help you out. Children, babies in particular love her and she is the most gentle and loving soul in the world to them. I just HATE HATE HATE this disease that she has. It makes her into a different person at the flip of a switch, the moment that she doesn’t get her way or that things don’t go the way that she plans and envisions them she goes from Dr. Jeckel to Ms. Hyde and becomes a monster. Long after her tantrum is done she is totally contrite and apologetic and asks forgivness with tears in her beautiful eyes.
So the next time you ask me how I am beware, the mask may slip…



